reMEmber - Supporting people with ME
reMEmber helps people with ME (myalgic encephalomyelitis) - also known as CFS (chronic fatigue syndrome) to get the best possible treatment and advice to enable them to lead happy and healthy lives.
Bill Kent's Windmill Walk
Bill says: "I have been secretary of the charity reMEmber for the last 18 years; helping to raise finds to support people with ME/CFS in Sussex and the surrounding area.
I have been doing the Windmill walk between Clayton Windmills (Jack & Jill), Ditchling Beacon and back simnce 2013. This will bwe my fifth year walking to raise funds for reMEmber.
It would be great if you can sponsor me today."
Dr Shepherd reports on Burgess Hill meeting
We shone the spotlight on ME/CFS research and management at our meeting on 14 May 2016. There were presentations by consultant immunologist Dr Amolak Bansal (research) and ME Association medical adviser Dr Charles Shepherd (management).
Here is a summary of the presentation on research and management of ME/CFS.
As well as giving information and advice reMEmber campaigns for better services and supports biomedical research. We belong to Forward ME, the national group of ME charities which meets at the House of Lords under the chairmanship of the Countess of Mar.
In 2014 Forward-ME established two important points:
- NICE admits its Guideline on ME/CFS is seriously flawed
- ME/CFS patients have a legal right to see the NHS specialist of their own choice. (Answers to a Question in Parliament).
To explain these points more fully we have reproduced a document and the minutes of the meeting here.