reMEmber - Supporting people with ME
reMEmber helps people with ME (myalgic encephalomyelitis) - also known as CFS (chronic fatigue syndrome) to get the best possible treatment and advice to enable them to lead happy and healthy lives.
reMEmber 2016 Christmas Appeal
Each year at this time we appeal to supporters, friends and relatives to make a donation so that we can continue to bring help to ME sufferers, particularly those who have been ill for a long time and their families. Getting patients early, accurate diagnosis from expert doctors, taking up problems with the authorities, putting on meetings with expert presenters all costs money.
Next year we hope to get a nationwide review of CFS/ME services started, and a project called Support, Empower and Employ which is aimed at helping people who have recovered to find suitable, probably part-time, work. Also support with benefits problems. Please tell your friends, neighbours and relatives about this. You can donate online.
Dr Shepherd reports on Burgess Hill meeting
We shone the spotlight on ME/CFS research and management at our meeting on 14 May 2016. There were presentations by consultant immunologist Dr Amolak Bansal (research) and ME Association medical adviser Dr Charles Shepherd (management).
Here is a summary of the presentation on research and management of ME/CFS.
As well as giving information and advice reMEmber campaigns for better services and supports biomedical research. We belong to Forward ME, the national group of ME charities which meets at the House of Lords under the chairmanship of the Countess of Mar.
In 2014 Forward-ME established two important points:
- NICE admits its Guideline on ME/CFS is seriously flawed
- ME/CFS patients have a legal right to see the NHS specialist of their own choice. (Answers to a Question in Parliament).
To explain these points more fully we have reproduced a document and the minutes of the meeting here.